News & Events

20 Mar 2015
Former president Dr. APJ Abdul Kalam Raising the Awareness of Rare Diseases in India. & Honorable Sri Y.S Chowdary Ministry of Science & Technology and Earth Sciences will preside over the function.


18 Feb 2015
Rare Diseases Day 2015


15 Jan 2015
Conference on Rare diseases and orphan drug development initiatives in India: Establishing a national plan for Rare Diseases


07 Jan 2015
NORD Annual Conference on The Rare Diseases and Orphan Products Breakthrough Summit

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Globally at least 7.6 million children are born annually with severe genetic or congenital malformations; 90% of these are in mid and low income countries. The higher prevalence of genetic disorders in a particular community may be due to some social and cultural factors consanguineous marriages). Genetic diseases can vary in severity from being fatal before birth to requiring continuous disease management and their onset covers all life stages from infancy to old age causing enormous burden on families, and society. The genetic services have not been integrated into the existing primary health care and medical services.

NORD Chairman’s Message

Globally at least 7.6 million children are born annually with severe genetic or congenital malformations; 90% of these are in mid and low income countries. The higher prevalence of genetic disorders in a particular community may be due to some social and cultural

E. Michael D. Scott, MBA



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