25 Sep 2013
Seminar on ‘Overseas Marketing Strategies,Opportunities for Orphan Drugs, IPR& Interaction with Kenyan FDA’
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In 2013, on World Rare Diseases Day we organized first of a kind conferenc “Developing Therapeutics for Neglected and Rare Disease” at Central drug research institute, Lucknow, India where more than 700 participants (mostly from academia) attended; from US, NIH, FDA and J.Med.Chem, have participated.
Globally at least 7.6 million children are born annually with severe genetic or congenital malformations; 90% of these are in mid and low income countries. The higher prevalence of genetic disorders in a particular community may be due to some social and cultural factors consanguineous marriages). Genetic diseases can vary in severity from being fatal before birth to requiring continuous disease management and their onset covers all life stages from infancy to old age causing enormous burden on families, and society. The genetic services have not been integrated into the existing primary health care and medical services.